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Home / Grown-ups only / Support Groups

  Preemies: The Essential Guide for Parents of Premature Babies    
  Linden and Paroli, mothers who met in the hospital when their preemies were born, and neonatologist Doron present a
  CHERUBS- The Assoc. of Congenital Diaphragmatic Hernia Res., Advoc., & Support    
  We are a non-profit, volunteer-run, support group for the families and medical care providers of children born with Congenital Diaphragmatic Hernia (CDH) around the world
  Children's Hemiplegia and Stroke Association    
  non-profit organization, offering support and information to families of infants, children, and young adults who have hemiplegic cerebral palsy, hemiplegia, hemiparesis, prenatal stroke, childhood stroke, infant stroke, perinatal stroke, neonatal stroke, in utero stroke, and stroke in neonates
  Down's Heart Group    
  The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects
  Friedreich's Ataxia Parents Group - FAPG    
  In September of 1997, a small group of FA parents began a mailing list to share questions, support and information about Friedreich's ataxia. Our online support group, FAPG, has grown to an international list that now includes parents of other childhood-onset ataxias.
  Little Hearts Matter    
  Little Hearts Matter is the national children's charity offering support and information to all families faced with single ventricle congenital heart disease
  Make A Child Smile    
  Supportive organization for parents of children with life threatening illnesses, via message board, chatroom and mailing list. Donations are accepted to help with administrative costs or dispersed to families that are in need of financial aid

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